The aim of the inquiry was to find an appropriate balance between the protection of patient information and the sharing of information to improve care. Then in 2012-13, Dame Fiona was asked by the Government to lead a second inquiry known as the Information Governance Review. The Caldicott report in 1997 also recommended that NHS organisations should each appoint a “guardian” to uphold these principles- these later became known as “Caldicott Guardians”. Published in 1997, the Caldicott report included six Caldicott Principles for sharing personal confidential data and established that confidential information should only be used when absolutely necessary, for a justifiable purpose, within the law and on a strict need-to-know basis. Īs well as being the first National Data Guardian, Dame Fiona was also appointed to lead a review of how patient information was protected. And always with the interests of patients at heart. “She tackled the thorniest of subjects with wisdom, kindness and skill,” he added.įew people in our lifetime will have such a lasting personal legacy. Matthew Gould, NHSX’s CEO, said on Twitter “we owe Dame Fiona a great debt of gratitude”. Her name is well known across our sector and beyond, but we had the added privilege of knowing her personally and holding dear the thoughtful, compassionate person behind the public profile.”
“She led us with unswerving integrity, modesty and a commitment to doing her best for patients and service users.
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“As members of the team who supported Dame Fiona in her work as National Data Guardian for Health and Social Care, we are full of sorrow at losing our inspirational colleague,” Carvel wrote. “In doing so, I will do my best to honour Dame Fiona’s legacy, seeking always to speak up on behalf of citizens for trustworthy use of data, as she did with such integrity over the many years of her work.Tributes have been paid to Dame Fiona Caldicott, the first National Data Guardian (NDG) for Health and Social Care, who has passed away aged 80.ĭame Fiona, who celebrated her 80th birthday in January, was appointed to the office of the National Data Guardian in November 2014 and was confirmed as the first statutory holder of the position in April 2019.Ī tribute written by John Carvel on behalf of the NDG panel and office team was posted on the gov.uk website on February 15. She has also held roles as the trust’s Caldicott Guardian and Chief Clinical Information Officer (CCIO), but will leave these positions on her appointment as NDG.ĭr Byrne said: “I am delighted to take on this important role and determined to work to ensure that citizens’ health and care data is used to ensure the safety and quality of individual care, to improve the health of the population, and to support the longer term effectiveness of our health and care system through research and innovation in treatment and models of care.
She intends to continue in her post as a consultant psychiatrist at South London and Maudsley NHS Foundation Trust, seeing patients on a part-time basis. With a background in psychiatry, Dr Byrne has more than 20 years of practical clinical experience. The appointment has also been reviewed and approved by the Health and Social Care Committee. The position was first established in November 2014 and legislation was passed in December 2018 to place the role on a statutory footing.ĭr Byrne was selected through an open public appointment process, which commenced in August 2020, to appoint a successor to Dame Fiona. The National Data Guardian’s role is to help ensure the public can trust that health and care information is securely safeguarded and used appropriately. Dr Nicola Byrne has been appointed the new National Data Guardian (NDG) for Health and Social Care for the next three years.ĭr Byrne is the second person to take up the role following Dame Fiona Caldicott, who passed away in February 2021.
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